The National MPS Society invites you to attend the “Finding our SPIRIT” conference for adults (ages 18 and up) diagnosed with MPS and ML. We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine things that are most important to you. Through this, we incorporated formal meeting time and time for you to spend together with your peers on your topics of interest.
In addition to the SPIRIT Conference, we hope everyone can attend the Family Conference as well, which begins at 1:00pm on Thursday afternoon with scientific sessions. Thursday night also includes an informal social gathering at the hotel after breakout sessions. On Friday morning, everyone at the Family Conference is invited to an exciting MPS Jingle Bell 5K Run/Walk, with sessions to follow for the rest of the day. An award ceremony and 50th anniversary celebration banquet on Friday night wraps up the family conference portion. Please see the annual family conference flyer for additional details and schedule.
The SPIRIT conference will take place from 8:30am – 3:00pm on Saturday, December 21. This focuses on the topics you have chosen, with sessions restricted to adults diagnosed with MPS or ML, ages 18 and up. Saturday evening will include a special dinner for SPIRIT attendees and their partners or caregivers! Caregivers may attend breakfast, lunch and dinner on Saturday and time at the theme park. Sessions are only open to meeting registrants (adults with MPS or ML) to allow for privacy and confidentiality during the discussions.
Criteria for applying:- Individual with MPS or ML
- Member of the National MPS Society, with registration renewed for 2024
- US resident
- Age 18 or older
Registration package includes:
- Travel to the conference (airfare or mileage reimbursement) for registrant and caregiver (if required), maximum $250 total reimbursement
- One night at the Hilton Orlando Lake Buena Vista Hotel for one standard guest room and tax ($218.25 value)
- Saturday breakfast lunch, and dinner
- One single-day, single-park Disney ticket upon attending the SPIRIT Conference
Registrants are responsible for making all travel arrangements, including hotel reservation, airfare, and ground transportation. Hotel guests are responsible for any incidental room charges such as phone calls, movies, or room service. A credit card is required to reserve the hotel room. Travel reimbursement is provided at the conference, although the registrant can request partial reimbursement prior to the conference if needed.
There is no registration fee for the SPIRIT conference; however, registrants must pay $50 to reserve a space for planning purposes. This deposit will be refunded at the conference for those who attend. Complimentary child care will be provided during the educational sessions.
For more information, visit mpssociety.org, call Bethany Greene at 919-806-0101, or email bethany@mpssociety.org. Information about accommodations and travel can be found in the enclosed National MPS Society Family Conference registration materials. Conference registration materials must be completed online or postmarked before November 27.
Information about accommodations and travel can be found in the Family Conference menu tab.
