39th Annual Family Conference Denver 2025
 
Agenda at a Glance

Thursday, August 7, 2025
Board of Directors and Afternoon/Evening Sessions 

  • Board of Directors Meeting (7:30 am - 1:00 pm, offsite)
  • Camp Courage
  • Registration opens at 1:00 pm 
  • Opening Sessions begin at 2:00 pm
  • Legacy and Research Awards
  • Welcome Dinner 5:30 pm - 7:00 pm
  • Newly Diagnosed Family Dinner
  • Relationship Breakout Sessions - (2 hours)

Friday, August 8, 2025
Horizon Sessions

  • Camp Courage
  • Family Photographs
  • Meeting sessions and topics, including scientific conferences, advocacy, FDA, NIH
  • SPIRIT Conference for Adults with MPS and ML runs concurrently 9:00 am - 3:00 pm
  • Breakfast and Lunch onsite
  • Denver Aquarium Outing 2:00 - 8:00 pm (buses provided)

Saturday, August 9, 2025
Family and Concurrent Sessions

  • Camp Courage
  • Meeting sessions and topics, including family conference, care management, concurrent/track-based sessions
  • Family Photographs
  • Breakout sessions - by Syndrome (2 hours)
  • Rememberance Ceremony 
  • Banquet Dinner (7:00 pm - 9:00 pm)

Information is subject to change.