39th Annual Family Conference Denver 2025
 

Finding our SPIRIT 
Strength, Purpose, Independence, Resilience, and Initiative Together
 
Conference for Adults with MPS and ML
Friday, August 8, 2025, 9:00 a.m. - 3:00 p.m. 
Sheraton Denver Downtown Hotel


The National MPS Society invites you to attend the “Finding our SPIRIT” conference.
SPIRIT focuses on the topics you have chosen, with sessions restricted to adults diagnosed with MPS or ML, ages 18 and up. We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine the most important things to you.  Through this, we incorporated formal meeting time and time for you to spend with your peers on your topics of interest.

 

We hope everyone can attend the family conference, as well as the SPIRIT conference. Conference sessions for SPIRIT will take place on Friday with a special outing to explore the Denver Downtown Aquarium, an Underwater Adventure.  Attendees are invited to join the Family Conference banquet celebration dinner on Saturday.    

 

  **Separate registration required for the SPIRIT Conference**

 


AGENDA

Friday, August 8, 2025

8:00 am - 9:00 am           Breakfast (Caregivers welcome)

9:00 am - 9:05 am           Welcome Remark

9:05 am - 12:00 pm         Conference Begins

12:00 pm - 1:00 pm         Lunch 

1:00 pm - 2:50 pm           Conference Continues

2:50 pm - 3:00 pm           Closing Remarks

3:00 pm - 8:00 pm           Denver Downtown Aquarium (buses provided) 

8:30 pm - 11:00 pm         Game Night, Sheraton Denver Downtown Hotel


Adult Conference and SPIRIT Scholarships

Some grant funding is available for registrants and, if necessary, for a caregiver or partner. The caregiver or partner can join the group during informal social gatherings. The sessions on Friday are open only to SPIRIT meeting registrants (those diagnosed with MPS or ML) to allow for privacy and confidentiality during the discussions.

Scholarships are limited and must be completed through the online application system at this link: https://mps.onlineapplications.net/applications/ Scholarship applications are due by June 16, 2025 at 11:59 p.m. EDT.

Criteria for applying:

  • Individual with MPS or ML
  • Member in good standing of the National MPS Society, with membership renewed for 2025
  • U.S. resident
  • Age 18 or older

Conference scholarships include:

  • Travel to the conference (airfare or mileage reimbursement) for registrant and caregiver (if required), maximum $350 total reimbursement. Registrant is responsible for making all travel arrangements.
  • Up to one additional night at the Sheraton Denver Downtown Hotel (one standard guest room and tax, valued at $295.16/night). Guest is responsible for incidental room charges such as phone calls, movies, or room service. (All SPIRIT attendees receive one night paid hotel room with SPIRIT registration.)


Registrants are encouraged to register for the 39th Annual National MPS Society Family Conference which begins Thursday, August 7th. Adults diagnosed with MPS or ML receive free registration for the Annual Family Conference, SPIRIT conference, and one hotel night, and financial assistance (up to $350 in travel reimbursement) to attend.

Conference registration materials must be completed online or postmarked before July 1, 2025.


While this conference has no registration fee, registrants must pay a $50 deposit upon registration to hold their space so we can adequately plan. This deposit will be refunded to those individuals who attend the conference. Registrants are responsible for making all travel arrangements including hotel reservations, airfare, and ground transportation. Complimentary child care will be provided during the educational sessions.

Due to limited funding, registrations will be accepted on a first-come, first-served basis. We encourage you to register early. Upon acceptance of your registration, you will be instructed to book your hotel room and arrange your transportation to the hotel. The Society will pay the cost of your hotel room and the tax. Travel reimbursement is provided at the conference, although the registrant can request partial reimbursement before the conference.

For more information, contact the Society at 919-806-0101 with questions or e-mail leslie@mpssociety.org. Information about accommodations and travel can be found on the conference website. You must book your accommodations before July 15, 2025.

Adults diagnosed with MPS or ML receive free registration for the family conference, SPIRIT conference, and one hotel night, and financial assistance (up to $350 in travel reimbursement) to attend.