Washington Days 2024

The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We are looking forward to gather together in person with hundreds of volunteer advocates from across the United States to meet with legislators and staff to discuss issues important to our community such as federal funding for bleeding disorder programs and supporting policies that increase affordability of coverage, and access to care.  

The issues at Washington Days 2024 will include:

  • Bleeding Disorders Awareness (March is our month!)
  • Federal Funding for Bleeding Disorders Program
  • S. 1375 / H.R. 830 "Help Ensure Lower Patient (HELP) Copays Act"

Washington Days 2024 will be a fully in-person event. Registration is required to attend. There is no registration fee, however, we will only accept registrations until Monday, January 15, 2024. There will be no registration on-site.

Dates
March 6-8, 2024
 
Venue
Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001
 
Mobile App
Washington Days is going paperless! A mobile app* will be made available to all advocates that will enable them to:
  • view meeting schedules and receive notifications
  • take notes about meetings
  • reference talking points
  • view leave behinds and email them to congressional staff
  • research legislators' bios, voting records, news, social media pages, and more
  • research bills of interest (status, currents sponsors and co-sponsors, summary)
  • send thank you notes to congressional staff

*Mobile data rates may apply. Registered attendees will receive an email with instructions on how to download and access the app by February 2024.

NBDF's Infectious Disease Duty of Care

NBDF is committed to creating a safe and healthy environment for all of our community members: consumer, chapter, providers, presenters, exhibitors, and staff. However, while vaccinations, negative COVID tests, observance of safety protocols, and exercise of personal discipline may reduce risk, an inherent risk of exposure to COVID-19 does remain in any public place where people are present. Additional information can be found on NBDF’s Infectious Disease Duty of Care.

Masks/Face Coverings
Wearing a mask is a personal choice and we ask that everyone makes their choice responsibly. Given the numbers of individuals coming from around the country, we encourage attendees to wear a mask throughout the meeting if they are, or someone in their home is, immunocompromised or at high risk for severe illness, or if they have a child who is 4 years of age or younger and thus is currently ineligible to receive a COVID-19 vaccine. All attendees should be mindful and respectful of other attendees' health choices.
 

 


SPONSORS



CONTACT US