9/14/2020 update:
If you were unable to join us for our live sessions or are interested in re-watching sessions from the conference, we've made the pre-recorded Basics webinars and portions of select live sessions* available. Please use your registration login info to access the recorded sessions.
*To protect the anonymity of attendees, we have cut out any portions where consumers shared their faces or shared personal stories.
The program schedule includes a virtual opening session, adult education sessions, kids and teen camp, industry roundtables and a Final Night Family Camp Affair!
Please note that all sessions at this conference are catered towards the rare bleeding disorders community, including but not limited to: Factor 5, 7, 10, 11, and 13 Deficiencies, Glanzmann’s thrombasthenia, Bernard-Soulier Syndrome, and other rare platelet disorders. If you are looking for content specific to Hemophilia A (Factor 8 Deficiency), Hemophilia B (Factor 9 Deficiency), or Von Willebrand disease, please register for our 2020 NHF's Virtual Bleeding Disorders Conference to watch on-demand content from this past conference.
All sessions from Monday, August 31 to Friday, September 4, 2020 will be live sessions.
All times are in Eastern Standard Time (EST).
Sunday, August 30 - Pre-recorded webinars
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Basics of Factor 5 Deficiency*
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Basics of Factor 11 Deficiency*
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Basics of Factor 7 Deficiency*
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Basics of Rare Platelet Disorders*
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Basics of Glanzmann’s thrombasthenia and Bernard-Soulier Syndrome*
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Basics of Factor 13 Deficiency*
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Basics of Factor 10 Deficiency*
* Please watch this pre-recorded webinar and bring all your questions to the corresponding Ask the Experts live session.
Monday, August 31
- 5:00PM-5:45PM Beauty in Rares
Tuesday, September 1
- 5:00PM-5:45PM Meet the Providers
- 6:00PM-6:45PM Ask the Expert: Factor V (5) Deficiency*
- 7:00PM-7:30PM BPL Industry Roundtable
- 7:35PM-8:05PM Takeda Industry Roundtable
- 8:15PM-9:00PM Ask the Expert: Glanzmann’s thrombasthenia and Bernard-Soulier Syndrome *
* Please watch this pre-recorded webinar and bring all your questions to the corresponding Ask the Experts live session.
Wednesday, September 2
- 5:00PM-5:45PM Ask the Expert: Factor XIII (13) Deficiency*
- 6:00PM-6:30PM A Moment of Reflection
- 7:00PM-7:45PM Ask the Expert: Factor VII (7) Deficiency*
- 8:15PM-9:00PM Sharing Your Truth & Mental Wellness
* Please watch this pre-recorded webinar and bring all your questions to the corresponding Ask the Experts live session.
Thursday, September 3
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5:00PM-5:45PM Ask the Expert: Factor XI (11) Deficiency*
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6:00PM-6:45PM Reproductive Health & Rare Bleeding Disorders
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7:00PM-7:30PM CSL Behring Industry Roundtable
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7:35PM-8:05PM Novo Nordisk Industry Roundtable
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8:15PM-9:00PM Ask the Expert: Factor X (10) Deficiency*
* Please watch this pre-recorded webinar and bring all your questions to the corresponding Ask the Experts live session.
Friday, September 4
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5:00PM-5:45PM Ask the Expert: Rare Platelet Disorders*
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6:00PM-6:30PM We're All in This Together Networking (closed to industry and specialty pharmacy)
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6:45PM-7:30PM How Far We’ve Come Finale
* Please watch this pre-recorded webinar and bring all your questions to the corresponding Ask the Experts live session.