Full agenda and session schedule to follow.

Schedule

Thursday, December 19

8:00 a.m. – 12:30 p.m.                  Board of Directors meeting

12:00 p.m. – 5:00 p.m.                  Registration open

                                                            MPS Jingle Bell 5K Run/Walk packet pickup

12:30 p.m. – 4:30 p.m.                 Camp Courage Opens       

1:00 p.m. – 4:30 p.m.                    Scientific Conference Sessions

                                                                           Opening Plenary Session

                                                                           Science Today – Emerging Therapies & Treatments

                                                                           Research Updates

                                                                           Scientific Panel

                                                                           Research Grant Awards

4:30 p.m.                                       Camp Courage Closes

5:00 p.m. – 5:30 p.m.                     Family-Friendly Remembrance Celebration at Disney Springs

6:00 p.m. – 7:30 p.m.                     Welcome buffet dinner

                                                            Newly diagnosed family dinner (diagnosed in the last 12 months)

                                                                           Overview and Coping with MPS and ML

7:30 p.m. – 9:30 p.m.                    Camp Courage Opens

7:30 p.m. – 9:30 p.m.                     Breakout sessions (syndrome, connection, others)

9:30 p.m.                                        Camp Courage Closes

 

Friday, December 20

6:45 a.m. – 8:00 a.m.                    Grab-and-go breakfast, optional breakout gathering sessions

7:00 a.m.                                       Onsite registration and packet pickup for MPS Jingle Bell 5K Run/Walk

8:00 a.m. – 11:00 a.m.                  MPS Jingle Bell 5K Run/Walk, Celebration Lunch, Entertainment

10:00 a.m.                                     Awards and sponsor recognition

11:30 a.m.                                     Camp Courage Opens

11:30 a.m. – 5:30 p.m.                  Family Conference Sessions

                                                                           Care and management

                                                                           Neurological and neurocognitive needs

                                                                           Orthopedic issues

Concurrent sessions (including mental health/wellness, genetics, specific symptom management, and more)

5:30 p.m.                                          Camp Courage Closes

6:30 p.m.                                           50^th Anniversary Banquet Celebration Dinner and Party

8:30 p.m.                                           Special outing opportunity for those with MPS/ML and their siblings

Saturday, December 21 (SPIRIT ATTENDEES ONLY)

8:30 a.m. – 3:00 p.m.                     SPIRIT conference for adults with MPS or ML

                                                            Strength – Purpose – Independence – Resilience and Initiative Together

8:30 a.m. – 9:30 a.m.                     Breakfast (SPIRIT only)

9:30 a.m. – 12:00 p.m.                  Meeting Sessions

                                                                           Mental health and living well

                                                                           Care and symptom management

                                                                           Overcoming barriers

12:00 p.m. – 1:00 p.m.                  Lunch (SPIRIT only)

1:00 p.m. – 3:00 p.m.                     Meeting Sessions

                                                                           Transitions, Advocacy, and Independence

                                                                           Connecting with others