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| 7:30 am - 12:00 pm | Board of Directors Meeting |
| 2:00 pm - 8:00 pm | Registration |
| 2:45 pm - 9:45 pm | Camp Courage Opens |
| 3:00 pm - 3:05 pm | Welcome Announcements |
| 3:00 pm - 3:30 pm | Opening Keynote Speaker - Mark Sands, PhD |
| 3:00 pm - 10:00 pm | Reflection Area |
| 3:30 pm - 4:00 pm | Science Leading to New Therapies for MPS |
| 4:20 pm - 4:50 pm | Newborn Screening Updates |
| 4:50 pm - 5:15 pm | MPS I and MPS II Newborn Screening State by State Advocacy |
| 5:00 pm - 8:00 pm | MPS Music City Run, Rock and Roll 5K Package Pick-Up |
| 5:15 pm - 6:00 pm | Foundations Roundtable - Collaborations to Help the Patient Community |
| 6:00 pm - 7:30 pm | Welcome Buffet Dinner |
| 6:00 pm - 7:30 pm | Newly Diagnosed Family Dinner (diagnosed since December 2019) Overview and Coping with MPS and ML |
| 7:30 pm - 8:30 pm | MPS I - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | MPS II - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | MPS III - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | MPS IV - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | MPS VI - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | MPS VII - By Syndrome Breakout Session |
| 7:30 pm - 8:30 pm | ML II/III - By Syndrome Breakout Session - Mercedes Ramirez Johnson, Moderator |
| 7:30 pm - 9:30 pm | Sibling Breakout Sessions |
| 8:30 pm - 9:30 pm | Family Breakout: Mothers |
| 8:30 pm - 9:30 pm | Family Breakout: Fathers |
| 8:30 pm - 9:30 pm | Family Breakout: Grandparents |
| 8:30 pm - 9:30 pm | Family Breakout: Adults with MPS/ML |
| 8:30 pm - 9:30 pm | Family Breakouts: Bereaved Families |
| 9:45 pm | Camp Courage Closes |
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| 6:30 am - 8:00 am | Breakfast Buffet |
| 7:45 am | Camp Courage Opens |
| 7:45 am - 12:00 pm | Session I - MPS and ML Management and Care |
| 7:45 am - 8:00 am | 2022 Fundraiser Award - Kimber Heiling, MPS VI Mother |
| 7:45 am - 8:00 am | 2022 Chairman Award - Rev. Wayne Eppehimer |
| 8:00 am - 8:45 am | Overview and Treatment Status of MPS and ML II/III |
| 8:45 am - 9:30 am | Orthopedic Updates in MPS |
| 9:30 am - 10:00 am | Anesthesia and Airway Complications |
| 10:00 am - 10:30 am | Blood Stem Cell Transplantation & Gene Therapy for Hurler Syndrome |
| 10:40 am - 11:00 am | Q & A Session |
| 11:00 am - 11:45 am | Functional outcomes in MPS: Neurocognitive Function and Beyond |
| 11:45 am - 1:00 pm | Lunch Buffet |
| 12:15 pm | Camp Courage Closes |
| 12:45 pm | Camp Courage Opens |
| 12:45 pm - 2:45 pm | Session II - Patient and Family Warriors |
| 12:45 pm - 1:05 pm | 2022 Directors' Award - Christine Tippett, MPS IV Mother, Board of Directors |
| 12:45 pm - 1:05 pm | Visionary Leadership Award - Dr. Elizabeth F. Neufeld, PhD |
| 1:00 pm - 1:45 pm | Adults with MPS or ML Panel |
| 1:45 pm - 2:15 pm | Mission Fundraising - Get Involved |
| 2:15 pm - 2:45 pm | Siblings of MPS and ML Patients |
| 2:45 pm - 3:00 pm | Health Break |
| Session III - Industry and Clinical Trial Updates |
| 3:00 pm - 3:15 pm | MPS Family Conference:Takeda Update |
| 3:15 pm - 3:30 pm | JCR Presents Latest Updates on Pabinafusp alfa, JR-171, JR-441, and JR-446 |
| 3:30 pm - 3:45 pm | REGENXBIO Interim Analysis of Data From the RGX-121 Gene Therapy Clinical Trial for the Treatment of Severe MPS II |
| 3:45 pm - 4:00 pm | Sanofi presents: All About MPSI Disease; Information for Patients, Families and Friends |
| 4:00 pm - 4:15 pm | Homology New One-Time Approach to Treating MPS II: HMI-203 Investigational Gene Therapy |
| 4:15 pm - 4:30 pm | Ultragenyx MPS Updates |
| 4:30 pm - 4:45 pm | Denali Therapeutics Update on DNL 310 Clinical Program |
| 4:45 pm - 5:00 pm | Orchard Therapeutics Presents Hematopoietic Stem Cell Gene Therapy |
| 5:00 pm - 5:15 pm | BioMarin's Partnership with the MPS Community |
| 5:45 pm | Camp Courage Closes |
| 6:30 pm | Nashville Night on Your Own |
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| 6:30 am - 11:30 am | National MPS Society Walk and Roll 5K Run and 1 Mile Walk |
| 6:30 am - 7:45 am | Grab and Go Breakfast and Board Buses |
| 8:00 am - 11:00 am | 5K Chip Timed Run |
| 8:00 am - 11:00 am | Family Walk |
| 8:00 am - 11:00 am | Celebration Lunch |
| 10:45 am - 11:30 am | Board Buses Back to Sheraton; Return to Conference Sessions |
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| Scientific Conference, Saturday Noon - 4:30 pm |
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| 12:00 pm - 12:10 pm | Welcome, Overview, and New Developments in Science of MPS and at the Society |
| 12:10 pm - 1:00 pm | Session I: Society Funded Research Updates |
| 12:10 pm - 12:30 pm | A Clinically Relevant MPS IVA Animal Model |
| 12:30 pm - 12:50 pm | Early Development of MPS IIIA Dopaminergic Neurons: At the Nexus of Behavior Changes and Therapy |
| 12:50 pm - 1:00 pm | Question and Answer Panel |
| 1:00 pm - 1:50 pm | Session II: Society Funded Research Updates |
| 1:00 pm - 1:20 pm | Retracing the Developmental Roots of MPS II Neuropathology |
| 1:20 pm - 1:40 pm | Autoimmune Component of Sanfilippo Syndrome |
| 1:40 pm - 1:50 pm | Question and Answer Panel |
| 2:10 pm - 3:20 pm | Session III: Fellow Research in the MPSs |
| 2:10 pm - 2:30 pm | Preliminary Examination of Oligodendrocytes in the MPS VII Mouse Model |
| 2:30 pm - 2:50 pm | Cognitive Function in MPS Phenotypes That Do Not Have Decline |
| 2:50 pm - 3:10 pm | Genetic Barcoding for Improving Gene-Therapy Research in Sanfilippo Syndrome IIIB Research |
| 3:10 pm - 3:20 pm | Question and Answer Panel |
| 3:20 pm - 4:10 pm | Session IV: Society Funded Research Updates |
| 3:20 pm - 3:40 pm | Developing MRI to Distinguish Neuropathic and Nonneuropathic Forms of MPS II |
| 3:40 pm - 4:00 pm | Imaging Cells to Tell Which IDS Mutations Predict Hunter Syndrome Phenotypes |
| 4:00 pm - 4:10 pm | Question and Answer Panel |
| 4:10 pm - 4:30 pm | Scientific Sessions Recap and Open Question Forum |
| 1:50 pm - 2:10 pm | Health Break |
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| Family Conference, Saturday 1:00 - 5:00 pm |
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| 1:00 pm - 3:00 pm | Session V - Family Conference 1:00 - 4:00 pm Concurrent Sessions |
| 1:00 pm - 2:00 pm | Medical Trauma in Patients and Families |
| 1:00 pm - 2:00 pm | Genetic Testing/Family Planning |
| 1:00 pm - 2:00 pm | Navigating IEPs and Educational Needs |
| 1:00 pm - 2:00 pm | (Concurrent Sessions - Please Choose) |
| 2:00 pm - 3:00 pm | Medical Trauma in Patients and Families (Recurring) |
| 2:00 pm - 3:00 pm | Navigating IEPs and Educational Needs (Recurring) |
| 2:00 pm - 3:00 pm | Genetic Testing/Family Planning (Recurring) |
| 4:00 pm - 5:00 pm | Session VI: You Matter Too! Health and Wellness |
| 5:00 pm - 5:30 pm | Remembrance Ceremony |
| 6:30 pm - 8:30 pm | National MPS Society Banquet and Talent Show |
| 8:30 pm - 10:30 pm | Nashville Party with onsite music and beverages |
| 8:45 pm - 10:45 pm | Camp Courage Opens for Nashville Party |
