36th Annual Family Conference Nashville 2022
 
08/04/2022
7:00 am - 2:00 pmBoard of Directors Meeting
2:00 pm - 8:00 pmRegistration
2:45 pm - 9:45 pmCamp Courage Opens
3:00 pm - 3:30 pmOpening Keynote Speaker - Mark Sands, PhD
3:00 pm - 10:00 pmReflection Area
3:30 pm - 4:00 pmEmerging Science Overview for Families
4:20 pm - 4:50 pmNewborn Screening Updates
4:50 pm - 5:15 pmMPS I and MPS II Newborn Screening State by State Advocacy
5:00 pm - 8:00 pmMPS Music City Run, Rock and Roll 5K Package Pick-Up
5:15 pm - 6:00 pmFoundations Roundtable - Collaborations to Help the Patient Community
6:00 pm - 7:30 pmWelcome Buffet Dinner
6:00 pm - 7:30 pmNewly Diagnosed Family Dinner (diagnosed since December 2019) Overview and Coping with MPS and ML
7:30 pm - 8:30 pmSyndrome Breakout: MPS I
7:30 pm - 8:30 pmSyndrome Breakout: MPS II
7:30 pm - 8:30 pmSyndrome Breakout: MPS III
7:30 pm - 8:30 pmSyndrome Breakout: MPS IV
7:30 pm - 8:30 pmSyndrome Breakout: MPS VI
7:30 pm - 8:30 pmSyndrome Breakout: MPS VII
7:30 pm - 8:30 pmSyndrome Breakout: ML
7:30 pm - 9:30 pmSibling Breakout Sessions
8:30 pm - 9:30 pmFamily Breakout: Mothers
8:30 pm - 9:30 pmFamily Breakout: Fathers
8:30 pm - 9:30 pmFamily Breakout: Grandparents
8:30 pm - 9:30 pmFamily Breakout: Adults with MPS/ML
9:45 pmCamp Courage Closes
 
08/05/2022
7:00 am - 8:00 amBreakfast Buffet
7:45 amCamp Courage Opens
8:00 am - 8:45 amOverview and Treatment Status of MPS and ML II/III
8:00 am - 12:00 pmSession I - MPS and ML Management and Care
8:45 am - 9:30 amOrthopedic Updates in MPS
9:30 am - 10:00 amAnesthesia and Airway Complications
10:00 am - 10:30 amBone Marrow Transplant Updates for MPS I
10:40 am - 11:00 amQ & A Session
11:00 am - 11:55 pmNeurocognitive Findings in MPS
12:00 pm - 1:00 pmLunch Buffet
12:15 pmCamp Courage Closes
12:45 pmCamp Courage Opens
1:00 pm - 2:30 pmSession II - Patient and Family Warriors
1:00 pm - 1:45 pmAdults with MPS or ML Panel
1:45 pm - 2:15 pmMission Fundraising - Support for Families, Support for Research
2:15 pm - 2:45 pmSiblings of MPS and ML Patients
2:45 pm - 3:00 pmHealth Break
2:30 pm - 5:00 pmIndustry and Clinical Trial Updates
2:30 pm - 5:30 pmSession III - Translational Dialog with Key Stakeholders
5:45 pmCamp Courage Closes
6:30 pmNashville Night on Your Own
 
08/06/2022
7:00 am - 7:45 amGrab and Go Breakfast and Board Buses
8:30 am - 11:00 am5K Chip Timed Run
8:30 am - 11:00 amFamily Walk
8:30 am - 11:00 amCelebration Lunch
8:30 am - 11:00 amNashville MPS 5K Run, Family Walk, Celebration Lunch, & Entertainment
11:00 am - 11:30 amBoard Buses Back to Sheraton; Return to Conference Sessions
11:45 amCamp Courage Opens
12:00 pm - 5:00 pmNavigating Therapies and Clinical Trials
12:00 pm - 5:00 pmScience on the Horizon
12:00 pm - 5:00 pmSession IV - Scientific Conference
12:00 pm - 5:00 pmSociety-Sponsored Research Reports
1:00 pm - 3:00 pmMedical Trauma in Patients and Families
1:00 pm - 3:00 pmGenetic Testing/Family Planning
1:00 pm - 3:00 pmNavigating IEPs and Educational Needs
1:00 pm - 3:00 pmMental Health, Wellness, and Coping Strategies
2:00 pm - 3:00 pmMedical Trauma in Patients and Families
2:00 pm - 3:00 pmNavigating IEPs and Educational Needs
2:00 pm - 3:00 pmGenetic Testing/Family Planning
4:00 pm - 5:00 pmMental health, wellness, and coping strategies
5:00 pm - 5:30 pmRemembrance Ceremony
6:30 pm - 8:30 pmNational MPS Society Banquet and Awards
8:30 pm - 10:30 pmNashville Party with onsite music and beverages