7:00 am - 2:00 pm | Board of Directors Meeting |
2:00 pm - 8:00 pm | Registration |
2:45 pm - 9:45 pm | Camp Courage Opens |
3:00 pm - 3:30 pm | Opening Keynote Speaker - Mark Sands, PhD |
3:00 pm - 10:00 pm | Reflection Area |
3:30 pm - 4:00 pm | Emerging Science Overview for Families |
4:20 pm - 4:50 pm | Newborn Screening Updates |
4:50 pm - 5:15 pm | MPS I and MPS II Newborn Screening State by State Advocacy |
5:00 pm - 8:00 pm | MPS Music City Run, Rock and Roll 5K Package Pick-Up |
5:15 pm - 6:00 pm | Foundations Roundtable - Collaborations to Help the Patient Community |
6:00 pm - 7:30 pm | Welcome Buffet Dinner |
6:00 pm - 7:30 pm | Newly Diagnosed Family Dinner (diagnosed since December 2019) Overview and Coping with MPS and ML |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS I |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS II |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS III |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS IV |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS VI |
7:30 pm - 8:30 pm | Syndrome Breakout: MPS VII |
7:30 pm - 8:30 pm | Syndrome Breakout: ML |
7:30 pm - 9:30 pm | Sibling Breakout Sessions |
8:30 pm - 9:30 pm | Family Breakout: Mothers |
8:30 pm - 9:30 pm | Family Breakout: Fathers |
8:30 pm - 9:30 pm | Family Breakout: Grandparents |
8:30 pm - 9:30 pm | Family Breakout: Adults with MPS/ML |
9:45 pm | Camp Courage Closes |
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7:00 am - 8:00 am | Breakfast Buffet |
7:45 am | Camp Courage Opens |
8:00 am - 8:45 am | Overview and Treatment Status of MPS and ML II/III |
8:00 am - 12:00 pm | Session I - MPS and ML Management and Care |
8:45 am - 9:30 am | Orthopedic Updates in MPS |
9:30 am - 10:00 am | Anesthesia and Airway Complications |
10:00 am - 10:30 am | Bone Marrow Transplant Updates for MPS I |
10:40 am - 11:00 am | Q & A Session |
11:00 am - 11:55 pm | Neurocognitive Findings in MPS |
12:00 pm - 1:00 pm | Lunch Buffet |
12:15 pm | Camp Courage Closes |
12:45 pm | Camp Courage Opens |
1:00 pm - 2:30 pm | Session II - Patient and Family Warriors |
1:00 pm - 1:45 pm | Adults with MPS or ML Panel |
1:45 pm - 2:15 pm | Mission Fundraising - Support for Families, Support for Research |
2:15 pm - 2:45 pm | Siblings of MPS and ML Patients |
2:45 pm - 3:00 pm | Health Break |
2:30 pm - 5:00 pm | Industry and Clinical Trial Updates |
2:30 pm - 5:30 pm | Session III - Translational Dialog with Key Stakeholders |
5:45 pm | Camp Courage Closes |
6:30 pm | Nashville Night on Your Own |
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7:00 am - 7:45 am | Grab and Go Breakfast and Board Buses |
8:30 am - 11:00 am | 5K Chip Timed Run |
8:30 am - 11:00 am | Family Walk |
8:30 am - 11:00 am | Celebration Lunch |
8:30 am - 11:00 am | Nashville MPS 5K Run, Family Walk, Celebration Lunch, & Entertainment |
11:00 am - 11:30 am | Board Buses Back to Sheraton; Return to Conference Sessions |
11:45 am | Camp Courage Opens |
12:00 pm - 5:00 pm | Navigating Therapies and Clinical Trials |
12:00 pm - 5:00 pm | Science on the Horizon |
12:00 pm - 5:00 pm | Session IV - Scientific Conference |
12:00 pm - 5:00 pm | Society-Sponsored Research Reports |
1:00 pm - 3:00 pm | Medical Trauma in Patients and Families |
1:00 pm - 3:00 pm | Genetic Testing/Family Planning |
1:00 pm - 3:00 pm | Navigating IEPs and Educational Needs |
1:00 pm - 3:00 pm | Mental Health, Wellness, and Coping Strategies |
2:00 pm - 3:00 pm | Medical Trauma in Patients and Families |
2:00 pm - 3:00 pm | Navigating IEPs and Educational Needs |
2:00 pm - 3:00 pm | Genetic Testing/Family Planning |
4:00 pm - 5:00 pm | Mental health, wellness, and coping strategies |
5:00 pm - 5:30 pm | Remembrance Ceremony |
6:30 pm - 8:30 pm | National MPS Society Banquet and Awards |
8:30 pm - 10:30 pm | Nashville Party with onsite music and beverages |