35th Annual Family Conference, Virtual Event


The National MPS Society invites you to attend the 35th Annual Family and Science Conference. This virtual event includes a full agenda with speakers on topics requested by our members and offers time for you to connect with others and learn the latest information about MPS and ML.

What is new this year?  2021 is the first year we will host science sessions concurrently with our family conference! Dr. Matthew Ellinwood and the Team are excited to bring this critical research information to our attendees. In addition, Connected Together is providing live syndrome breakout sessions on Sunday, June 27th for each of our MPS and ML families. We hope you enjoy connecting within your syndrome groups on critical and relevant information. 
Please note that all scheduled times are in EDT.


Registration will take place online and is free for families who have children with MPS or ML, and free for adults with one of these diagnoses. The conference price is $100 per person for a professional. Attendees will complete registration and then receive an email with instructions to log into the webinar to participate in the conference prior to June 19. Please email conference@mpssociety.org or call 919-806-0101 if you have any questions.

Free swag bags are available with registrations while supplies last!

Virtual Camp Courage

Children with MPS and ML and their siblings are the highlight of our conferences! Though physically distanced, we will host our child care program, Camp Courage, this year. Camp Courage will run concurrently to sessions and allow for caregivers to participate in meetings while children have entertainment scheduled throughout the day. Surprise guests will offer fun and interactive sessions, music, story time, games, and more! Camp Courage is open to children of any age and will be accessible on any registered device. If you would like for your child to participate, please ensure we have the names, ages, and syndrome type (if applicable) of all attendees for Camp Courage when you register.


Specific sessions will be listed under the “Schedule” tab. Conference registrants can attend any session. For sessions that run concurrently, attendees may switch rooms at any time, or access multiple rooms on several devices under a family registration. Please ensure all attendees are registered for the conference.