33rd Annual Family Conference Disney 2019

Finding our SPIRIT - Strength, Purpose, Independence, Resilience, and Initiative Together 

The National MPS Society invites you to attend a conference specific for adults with MPS and ML, ages 18 and up: “Finding Our SPIRIT.” We have worked with the Adult Resource Committee, spoken with you, and reviewed evaluations to determine things that are most important to you. Through this, we incorporated formal meeting time and time for you to spend with your peers on your topics of interest. The SPIRIT conference will take place on Saturday, December 21 from 8:30am - 3:00pm.
8:30 am - 3:45 pmSalon I-IISPIRIT Conference for adults with MPS and ML [More Info]
9:00 am - 9:30 amSalon I-IISPIRIT Conference Welcome
Seth Rotberg, Our Odyssey
9:30 am - 10:30 amSalon I-IIWorking and SSI, Medicaid
Tom Wier, Social Security Administration
10:30 am - 12:00 pmSalon I-IIUnderstanding and Breaking Down the Psychosocial Barriers in Chronic Conditions
Kendra Bjoraker PhD, L.P., 3:1 Neuropsychology Consultants
12:00 pm - 1:00 pmSalon IIINetworking Lunch
1:00 pm - 1:45 pmSalon I-IILiving Your Life with Purpose: Transitions as an Adult with a Rare Disease
Kendra Bjoraker PhD, L.P., 3:1 Neuropsychology Consultants
1:45 pm - 2:30 pmSalon I-IINavigating Work and Internships, Transitioning from College to Career
Seth Rotberg, Our Odyssey
2:30 pm - 3:15 pmSalon I-IICBD Oils and its Benefits
Mojan Zehtabichi ND
3:00 pm - 3:45 pmSalon I-IIPlant-Based and Anti-Inflammatory Diets
Mojan Zehtabichi ND
Please visit www.etouches.com/2019spirit for more information and to register.