OBJECTIVES

Navigating PKU™ is an educational community program series that addresses a variety of topics to help patients, families and caregivers navigate their journey living with PKU. This program will be available at no cost and consist of either in-person, virtual or hybrid sessions.

EVENTS

DAYTON,  MN; DEHN'S PUMPKIN PATCH
SATURDAY, OCTOBER 10, 2026
1:00 PM - 3:00 PM
Sommer Gaughan, Patient Engagement Liaison
Community Education and Connection: Supporting the PKU Community

HERSHEY, PA; HERSHEY GARDENS
MONDAY, OCTOBER 12, 2026
10:30 AM - 12:30 PM
Cristian Ramirez, Patient Engagement Liaison
Community Education and Connection: Supporting the PKU Community

GLASTONBURY, CT; GLAZED POTTERY PAINTING & ART STUDIO
WEDNESDAY, OCTOBER 14, 2026
5:30 PM - 8:30 PM
Cristian Ramirez, Patient Engagement Liaison
Community Education and Connection: Supporting the PKU Community

BRANDON, FL; PAINTING WITH A TWIST
SATURDAY, OCTOBER 17, 2026
12:00 PM - 3:00 PM
Karina Lambertini, Patient Engagement Liaison
Community Education and Connection: Supporting the PKU Community

MONTCLAIR, NJ; PINOT'S PALETTE
SUNDAY, OCTOBER 18, 2026
3:30 PM - 5:30 PM
Cristian Ramirez, Patient Engagement Liaison
Community Education and Connection: Supporting the PKU Community

ST. LOUIS, MO; KITCHEN CONSERVATORY
SATURDAY, NOVEMBER 7, 2026
11:30 AM - 3:30 PM
Jenn Beazer, MPH, RDN, LD
PKU Friendly Holiday Cooking

REQUEST AN EVENT
Don't see an event in your area? You can request an event by filling out a simple form.

LOGISTICS

All events are open to individuals living with PKU, as well as their caregivers and family members.  There is no cost to attend and a meal will be provided at the program.

If you are interested in attending an upcoming event in your area, please click "Register Here"  to complete the electronic form for yourself and any other applicable attendees.

CONTACTS

PROGRAM SERIES CONTACT:

Malisa Rust | PTC Therapeutics, Inc. | Patient Engagement Lead

mrust@ptcbio.com

LOGISTICAL CONTACT:

Devin O'Donnell | Meeting Logistics, LLC | Director, Meeting & Special Events

dodonnell@mtglogistics.com