OBJECTIVES

Navigating PKU™ is an educational community program series that addresses a variety of topics to help patients, families and caregivers navigate their journey living with PKU. This program will be available at no cost and consist of either in-person, virtual or hybrid sessions.

EVENTS

AUSTIN, TX; PAINTING WITH A TWIST
SUNDAY, MAY 17, 2026
2:30 PM - 4:30 PM
Natalie Beall, Patient Engagement Liaison
Colors of Connection: Supporting the PKU Community

BAKERSFIELD, CA; CORKS & STROKES
SUNDAY, MAY 17, 2026
3:00 PM - 6:00 PM
Aurora Flores, Patient Engagement Liaison
PKU Awareness Month Community Event

BRONX, NY; THE BRONX ZOO
SATURDAY, MAY 30, 2026
10:00 AM - 1:00 PM
Soo Shim, MS, MBA, LCSW and Barbara Cubic, PKU Mom and Advocate
Tools to Thrive and Flourish with PKU: Coping and Resources

BOISE, ID; ST. LUKE'S CHILDREN'S PAVILION
SATURDAY, MAY 30, 2026
11:00 AM - 1:00 PM
Jenn Beazer, MPH, RDN, LD
Hands-On Cooking Class

SANTA ANA, CA; DISCOVERY CUBE ORANGE COUNTY
SATURDAY, JUNE 20, 2026
10:30 AM - 12:30 PM
Soo Shim, MS, MBA, LCSW
Navigating Financial Resources and Insurance

REQUEST AN EVENT
Don't see an event in your area? You can request an event by filling out a simple form.

LOGISTICS

All events are open to individuals living with PKU, as well as their caregivers and family members.  There is no cost to attend and a meal will be provided at the program.

If you are interested in attending an upcoming event in your area, please click "Register Here"  to complete the electronic form for yourself and any other applicable attendees.

CONTACTS

PROGRAM SERIES CONTACT:

Malisa Rust | PTC Therapeutics, Inc. | Patient Engagement Lead

mrust@ptcbio.com

LOGISTICAL CONTACT:

Devin O'Donnell | Meeting Logistics, LLC | Director, Meeting & Special Events

dodonnell@mtglogistics.com