Chapter Directory

Coordinate with your local chapter to register and attend Washington Days 2026.

If you are unaffiliated with any chapter, please contact Nathan Schaefer at nschaefer@bleeding.org.

For pharmaceutical and biotech industry partners and sponsors, please email Johanna Ong at jong@bleeding.org.

State Chapter Name Executive Director Email Phone Number Website
Alaska Alaska Hemophilia Association John Palmatier alaskahemo@gmail.com (907) 343-9232 www.alaskableedingdisorders.org
Arizona Arizona Bleeding Disorders Leigh Goldstein Leigh@arizonahemophilia.org (602) 955-3947 www.arizonahemophilia.org
California Central California Bleeding Disorders Foundation Stephanie Hill  Stephanie@cchfsac.org (916) 448-0370 www.ccbdf.org
California Northern California Bleeding Disorders Foundation April Steger director@NorCalBDF.org (510) 658-3324 www.NorCalBDF.org 
California Hemophilia Foundation of Southern California Rigoberto Garcia II rigo@hemosocal.org (626) 765-6656 www.hemosocal.org
California Hemophilia Association of San Diego County Nooshin Kosar nooshin@hasdc.org (619) 325-3570 www.hasdc.org
Colorado Colorado Chapter, NBDF Perry Jowsey pjowsey@bleeding.org (720) 545-0755 https://co.bleeding.org/
Florida Bleeding Disorders Foundation of Florida Fran Haynes franhaynes@hemophiliaflorida.org (407) 629-0000 www.bleedingdisordersfl.org
Florida Florida Bleeding Disorders Association  Pepper Adair  padair@floridahemophilia.org (305) 235-0717 www.floridahemophilia.org
Georgia Hemophilia of Georgia, Inc.  Rob Maloney rjmaloney@hog.org (770) 518-8272 www.hog.org
Hawaii Hawaii Chapter, NBDF Kyra Calbero kcalbero@bleeding.org (808) 284-7417 https://hi.bleeding.org/
Idaho Idaho Chapter, NBDF Marlyn Walker  mwalker@bleeding.org    https://id.bleeding.org/
Illinois Bleeding Disorders Alliance Illinois Liz Burgess lburgess@bdai.org   www.bdai.org
Indiana Hemophilia of Indiana Scott Ehnes sehnes@hoii.org (317) 570-0039 www.hoii.org
Iowa Bleeding Disorders of the Heartland Brooke Loving bdh_director@bdheartland.org (319) 721-1664 https://bdheartland.org/
Kentucky Kentucky Hemophilia Foundation Ursela Kamala ursela@kyhemo.org (502) 456-3233 www.kyhemo.org
Kentucky Bleeding Disorders of Kentucky Alane Foley afoley.bdoky@gmail.com,    
Louisiana Louisiana Hemophilia Foundation Danielle Rowley director@lahemo.org (225) 291-1675 www.lahemo.org
Massachusetts New England Hemophilia Association Rich Pezzillo rpezzillo@newenglandhemophilia.org (781) 326-7645 www.newenglandhemophilia.org
Michigan Hemophilia Foundation of Michigan Sue Lerch slerch@hfmich.org (734) 544-0015 www.hfmich.org
Minnesota Upper Midwest Bleeding Disorders Alliance Vicki Kopplin  vickik@hfmd.org (651) 406-8655 www.hfmd.org
Missouri Midwest Hemophilia Association Angela Brown Angela.Brown@midwesthemophilia.org (816) 479-5900 www.midwesthemophilia.org
Missouri Gateway Bleeding Disorders Association Bridget Tyrey bridgettyrey@gatewayhemophilia.org (314) 482-5973 http://www.gatewaybd.org
Montana Rocky Mountain Hemophilia and Bleeding Disorders Association Brad Benne brad@rmhbda.org (406) 586-4050 www.rmhbda.org
Nebraska Nebraska Chapter, NBDF Makenna Dietrich mdietrich@bleeding.org (402) 742-5663 https://ne.bleeding.org/
Nevada Nevada Chapter, NBDF Jacob Murdock  jmurdock@bleeding.org (702) 564-4368 https://nv.bleeding.org/
New Jersey Hemophilia Association of New Jersey Stephanie Lapidow slapidow@hanj.org (732) 249-6000 http://www.hanj.org
New Mexico Sangre de Oro, Bleeding Disorders Foundation of New Mexico Michelle Bloodworth sdo@sangredeoro.org (505) 341-9321 http://sangredeoro.org
New York Western New York BloodCare Thomas Greico tgreico@wnybloodcare.org (716) 218-4018 www.wnybloodcare.org
New York New York City Hemophilia Chapter Inc. Jeremy Griffin Jeremy.Griffin@nyhemophilia.org (917) 722-3887 www.nyhemophilia.org
New York Bleeding Disorders Association of Northeastern New York Beth Mahar beth.m@bdaneny.org (518)729--3577 www.bdaneny.org
New York Mary M. Gooley Hemophilia Center Tom Wilmarth thomas.wilmarth@rochesterregional.org (585) 922-5700 www.hemocenter.org
North Carolina Bleeding Disorders Foundation of North Carolina Charlene Cowell c.cowell@bleedingdisordersnc.org (919) 319-0014 www.bleedingdisordersnc.org
North Dakota Bleeding Disorders Alliance of North Dakota Emily Ouellette director@bdand.org (701) 381-0670 www.bdand.org
Ohio Southwestern Ohio Hemophilia Foundation Joy Linder joy@swohf.org (937) 298-8000 www.swohf.org
Ohio Greater Ohio Bleeding Disorders Foundation Tanya Stewart tanya@gobdf.org (216) 834-0051 www.nohf.org
Ohio Tri-State Bleeding Disorders Foundation Helen Lamping helen@tsbdf.com (513) 961-4366 www.tsbdf.com
Ohio Northwest Ohio Hemophilia Foundation Carla Wells carla@nwohemophilia.org (419) 291-5882 www.nwohemophilia.org
Oklahoma Oklahoma Hemophilia Foundation Kerri Crabtree director@okbleedingdisorders.org (918) 605- 2579 www.okhemophilia.org
Oregon Pacific Northwest Bleeding Disorders Madonna McGuire Smith m.mcguiresmith@pnwbd.org (541) 753-0730 www.pnwbd.org
Pennsylvania Eastern Pennsylvania Bleeding Disorders Foundation Sarah Pilacik sarah@epbdf.org (610) 770-5215 https://epbdf.org/
Pennsylvania Western Pennsylvania Bleeding Disorders Foundation Kara Dornish kara@wpbdf.org (724) 741-6160 www.wpbdf.org
Puerto Rico Asociación Puertorriqueña de Hemofilia y Condiciones de Sang Anthony Llanes Rodriguez allanes@hemofiliapr.org +1 787-647-7985 https://hemofiliapr.org
South Carolina Bleeding Disorders Association of South Carolina Sue Martin Sue.martin@bda-sc.org (864) 350-9941 www.bda-sc.org
Tennessee Tennessee Hemophilia and Bleeding Disorders Foundation Amanda Wilson amanda.Wilson@thbdf.org (615) 900-1486 www.thbdf.org
Texas Texas Central Bleeding Disorders Julie Fredericksen Jones julie@texcen.org (972) 386-3865 www.texcen.org
Texas Lone Star Bleeding Disorders Foundation Melissa Compton mcompton@lonestarbleedingdisorders.org (713) 686-6100 www.lonestarbleedingdisorders.org
Virginia Hemophilia Association of the Capital Area Brenda Bordelon director@hacacares.org (703) 352-7641 www.hacacares.org
Virginia Virginia Hemophilia Foundation Heather Conner heather@vahemophilia.org (804) 740-8643 www.vahemophilia.org
Washington Bleeding Disorder Foundation of Washington Claire Symons clairesymons@bdfwa.org (206) 533-1660 www.bdfwa.org
West Virginia West Virginia Chapter, NBDF Mary Lou Warner mwarner@bleeding.org (304) 212-2616 https://wv.bleeding.org/
Wisconsin Great Lakes Hemophilia Foundation Danielle Leitner Baxter dbaxter@glhf.org (414) 257-0200 www.glhf.org

 

 

 

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