BDC Planning Committee

Chapter Track

Angela Brown

Executive Director, Midwest Hemophilia Association.

Chloe Gardner

Chloe Gardner is a dedicated health education advocate and outdoor enthusiast thriving with von Willebrand disease. With a degree in Business Management, Chloe brings strategic thinking and organizational skills to her role as Chapter Outreach Coordinator for the Nevada Chapter of NBDF. Her blend of experience, education, and passion allows her to make a meaningful impact, fostering a stronger, more supportive community.

Nooshin Kosar

Executive Director, Hemophilia Association of San Diego County.

Brooke Loving

Brooke is the wife of Joe Loving. Brooke and three of their seven children are diagnosed with Von Willebrand Disease. Brooke is passionate about the Bleeding Disorders of the Heartland (BDH) membership feeling connected and providing programs that will build relationships that will last a lifetime. Brooke has been involved with BDH as a member, board member and President of Directors, and now serves as the organization’s Executive Director.

Vic McCarty

Vic McCarty currently serves as Chief Community Engagement Officer at Hemophilia of Georgia, a role he has fulfilled since 2021. Vic has been involved in nonprofit organizations and fundraising since 2001. Most notable to HoG, Vic created the Trot to Clot 5K Run and Walk event for Hemophilia of Georgia. Vic also has a strong background in strategic and visionary planning, engaging community stakeholders, securing charitable support from corporations, and providing training for event committees and volunteers. He has worked with business executives, community leaders, college students, and internal staff on creating and signature fundraising events as well as developing vision plans and timelines for such events. Vic has worked with several nonprofit youth organizations, serving as both a volunteer and staff member. Vic resides in Marietta with his wife, Shanie, and two kids. He enjoys traveling, cooking, spending time with family and friends, and volunteering with Georgia 4-H Foundation.

Vickie Parra

For the past 8 years, Vickie has had the privilege of working for Arizona Bleeding Disorders as the Camp Programs and Conference Manager. Prior to her role at the chapter, she was fortunate to volunteer for 8 years as a community member motivated to give back to the chapter and community. When not working, she truly cherishes the opportunity to embrace the beauty of nature through camping, hiking, and immersing herself in activities that bring her joy and a sense of adventure.

Danielle Rowley

Danielle is a mother of three: Caleb (Marine veteran), Christopher (Active Duty Airforce), and Randy (Lockheed Martin). Her passion for those in the bleeding disorders community, who serve, or has served runs deep. She has been with the Louisiana Hemophilia Foundation (LHF) for 4 and a half years. Before her current role she was the LHF Program Director and an educator in Livingston Parish for seven years. Her credentials include a Child Development Associates. She also completed the Dale Carnegie Leadership training with the Highest Award for Achievement in her class. Danielle feels that experience has been the best benefit to her as a person and has contributed to her passion for service and empathy for those in need. She has used her nonprofit knowledge to consult with several nonprofit organizations and currently serves as board secretary for the Andrew Service Jr Memorial Foundation.

Consumer Track

Sean Jeffrey

Sean Jeffrey has hemophilia A and has been an involved community member since a young age. He formerly worked for NBDF as the program manager for the Colorado chapter and has been involved with national programs such as NYLI and the HFA Board, as well as the international programs SURO and AFFIRM. Currently, he serves on the MASAC Pain subcommittee as the patient representative. He lives in Montana, where he works for the Forest Service. He enjoys rafting, hiking, and spending time with his pets Bella and Palmer.

Perry Jowsey

Perry Jowsey has served as Executive Director for the Colorado Chapter of the National Bleeding Disorders Foundation since June 2019 where he has increased revenue by 38%. During this time, the Chapter has been nationally recognized on many occasions, including as a Chapter of Excellence Programs and Services 2020, CSL Behring LEAD Grantee 2020, NBDF Capacity Building Grantee for Health Equity, Diversity, and Inclusion 2023, and the Ziggy Douglas Innovation in Youth Programming Award 2023. Last year the Colorado Chapter served more than 1,300 community members across 26 unique events.

Perry has presented data-driven workshops on community engagement at the Chapter Leadership Seminar (2020, 2022, 2023), served as a panelist on the Making Change for Health Equity Diversity & Inclusion session at Bleeding Disorders Conference 2023 in Washington DC, and delivered a poster presentation at the Health Equity Summit 2024 in New Orleans.

Prior to joining the chapter, Perry worked for 6 years with a statewide early literacy organization where he doubled the annual operating budget, doubled financial assets, and fueled program growth, adding nearly 40,000 families annually.

A Certified Fund Raising Executive, Perry has raised more than $25 million in his career and has taken 3 organizations beyond the $1 million annual budget milestone. He has served on various local boards and city commissions. He is a two-time candidate for Aurora City Council, where his professional and personal ventures have brought people together to serve the community in an inclusive, collaborative, outcome-based manner to help the most vulnerable populations find support and voice.

Erica McLeod

As a mom of 4, which includes 3 young adult sons with severe hemophilia A as well as a daughter who is not a carrier, living with a bleeding disorder can be very challenging and overwhelming. I am an avid advocate and believe using your voice is key for awareness and change.

I have testified before my local legislators about the importance and accessibility of healthcare rights in the bleeding disorders community. I have spoken at numerous parent events and support groups. I am also very active with my local bleeding disorder chapters.

My goal is always to encourage and inspire others in hopes that their hemophilia journey is lighter and brighter.

Paxton Mills

Paxton Mills is a biochemistry and molecular biology major at the University of Richmond. She is also an NBDF NYLI member on the research track and a VHF community member with a rare bleeding disorder. With the Bleeding Disorders Conference Planning Committee, Paxton serves our ultra-rare communities by planning engaging and educational programming for BDC. Paxton is passionate about hematology and scientific research. She hopes to forge a career path conducting research on rare blood disorders.

Chelsea A. Nabritt, RN

Chelsee Nabritt is a former NYLI member, who has been heavily active in the bleeding disorder community since 2001, when she was diagnosed with Platelet Storage Pool Disorder. From there, Chelsee was introduced to a friendly community through Hemophilia of Georgia, where she attended camp annually. When she became a teenager, she attended teen retreats and family camps and decided to be a camp counselor for a few years to better serve the youth.

As a young adult, Chelsee learned about the National Bleeding Disorder Foundation’s youth leadership program, NYLI (National Youth Leadership Institute), and decided to join the Advocacy track. At the time, Chelsee had just started her career in local and state government, so volunteering to advocate on Capitol Hill on behalf of the foundation became a newfound passion of hers. Having a bleeding disorder can be a challenging experience, and the journey can be tough, so helping the youth learn how to navigate through life with a bleeding disorder and teaching them how to advocate for themselves became a true passion of hers as well.

Chelsee received her Master’s degree in Strategic Leadership Development from Clayton State University and her Bachelor’s degree in Sociology from Kennesaw State University. Chelsee currently works as a Community Outreach Manager at the Georgia Department of Behavioral Health and Developmental Disabilities; she previously served as the executive assistant to the Forsyth County Manager and the Georgia House of Representatives at the Georgia State Capitol.

Frances Rivera Pacheco

Frances Marie Rivera Pacheco is a bleeding disorder advocate that focuses her efforts on menstruating individuals and ultra-rares.

She is also a fierce advocate for mental health and can be heard hosting "The Self-Growth Train", a podcast that combines personal stories, opinions and research in order to better guide her listeners through their self-growth journeys.

At this time, her goal is to continue working towards becoming a Global Advocate for the bleeding disorders community and beyond.

Penni J Smith, RN-BC

Penni Smith is the Inherited Bleeding Disorders Program Coordinator/RN Navigator for the Utah Center for Bleeding and Clotting Disorders at Primary Children’s Hospital (PCH) in Salt Lake City, UT. She has been the Nurse Navigator at the center since October 2008 and recently took on the role of Program Coordinator in early 2023. She works closely with physicians, nurse practitioners, physical therapists, and social work to improve clinic flow and the patient/family experience. She has been involved in research at Primary Children’s Hospital/University of Utah, including the HOPE-B trial. She has a genuine enthusiasm for her patients and their families; this same enthusiasm drives her desire to volunteer in her community. She serves as the Executive Director for Christmas Jam of Utah, a 501c3. She enjoys spending time with her family, drawing/painting, and spending time in nature outside of work hours.

Kimberly Wilt

My name is Kimberly Wilt, and I am a mother of three children, one of whom has severe Type 1C Von Willebrand Disease. I am an advocate for women with bleeding disorders and currently volunteer with the Virginia Hemophilia Foundation to establish a Von Willebrand Disease Committee. Additionally, I am involved in efforts to create a global Von Willebrand Disease Alliance.

Medical Track

Meera B. Chitlur, MD

Stacy E. Croteau, MD, MMS

Amy Dunn, MD

Steven W. Pipe, MD

Nursing Track

Tami Bullock, RN-BC, BSN

Tami has been a part of the multidisciplinary team at the University of Iowa Hemophilia Treatment Center for 19 years, in different roles. Initially as a HTC Nurse Coordinator on-sight in the hospital/clinic. Since 2017 she has been functioning as a HTC Nurse Coordinator primarily servicing the HTC population in the home setting providing community/home education and infusion services. Prior to joining the HTC team she worked in home health, caring for a variety of patients. This is where she first began caring for people with hemophilia in the home setting, over 27 years ago.

Kimberly Hurdstrom, RN, BSN

Kim Hurdstrom has been a clinical nurse coordinator with the Colorado University Hemophilia and Thrombosis Center for the last 11 years. She has many different responsibilities in her role, but her focus is new diagnosis bleeding disorder patient education, community-based bleeding disorder education, and rare bleeding disorder patient education. She has helped to develop center-based guidelines for new patients, women’s health, and inhibitor patients. Currently she is a member of the NDBF nurse working group.

Physical Therapist Track

Michael Graham, PT, DPT

Michael Graham is a physical therapist at the Children's Hospital of the King's Daughters in Norfolk, Virginia. He has been involved with the HTC at CHKD part-time for the past 5 years, while also providing patient care throughout the pediatric hospital. In addition to bleeding disorders, his clinical interests include oncology, TBI/stroke and critical care/trauma related diagnoses. Michael currently serves as the Vice-Chair and Mid-Atlantic Region representative for the NBDF Physical Therapy Working Group.

Mark Krimmel, PT, DPT, RMSK

Mark Krimmel is a physical therapist with the hemophilia treatment centers at the Washington Center for Bleeding Disorders and Seattle Children’s Hospital in Seattle, WA where he has served for the last seven years. He has been on the PT Working Group as the Mountain States Representative for the last two years and contributed as a session speaker on the PT track at BDC in 2022. He currently serves on several subcommittees for the PT Newsletter, BDC Planning and MSKUS Practice Guidelines in MASAC. His clinical interests include the use of musculoskeletal ultrasound in diagnostics, bone and joint health and use of Pilates rehabilitation techniques in patients with bleeding disorders.

Social Work Track

Kathaleen M. Schnur, MSW, LCSW

Kathaleen Schnur has been a social worker at the Hemophilia Center of Western Pennsylvania since 2013. She serves on national professional groups and educational planning committees for both professionals and consumers. She currently serves as chair of the NBDF SWWG, is a social work representative on the Mid Atlantic’s Regional Executive Committee, is part of the Linda Gammage Social Work Conference planning committee, and participated in the NBDF State of the Science Research Summit. Kathaleen was also the recipient of the 2020 NHF Social Work Excellence Fellowship, she, and her co-authors’ work was published in the Haemophilia Journal. Additionally, Kathaleen works closely with her local bleeding disorder foundation to develop and plan targeted education for the community.

Lucy Ramirez, MSW, LCSW

Lucy Ramirez is a licensed clinical social worker for the Rush Hemophilia and Thrombophilia Treatment Center at the Rush University Medical Center in Chicago, Illinois. In her current position, Ms. Ramirez’s practice primarily involves counseling and educating individuals with bleeding disorders, their caregivers and family members. She has served as facilitator and guest speaker for patient educational events sponsored by the National Bleeding Disorders Foundation, the Bleeding Disorder Alliance of Illinois, the VWD Connect Foundation and the Coalition for Hemophilia B. She serves as the current vice chair of the National Bleeding Disorders Foundation’s Social Work Working Group.

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Phone: 212.328.3700 ext 728

Email: bdc@bleeding.org