BDC Planning Committee

Sean Jeffrey

Sean Jeffrey has hemophilia A and has been an involved community member since a young age. He formerly worked for NBDF as the program manager for the Colorado chapter and has been involved with national programs such as NYLI and the HFA Board as well as the international programs SURO and AFFIRM. Currently he serves on the MASAC Pain subcommittee as the patient representative. He lives in Montana where he works for the Forest Service and enjoys rafting and hiking and spending time with his pets Bella and Palmer.

Perry Jowsey

Perry Jowsey has served as Executive Director for the Colorado Chapter of the National Bleeding Disorders Foundation since June 2019 where he has increased revenue by 38%. During this time the Chapter has been nationally recognized on many occasions, including as a Chapter of Excellence Programs and Services 2020, CSL Behring LEAD grantee 2020, NBDF Capacity Building Grantee for Health Equity, Diversity, and Inclusion 2023 and the Ziggy Douglas Innovation in Youth Programming Award 2023 and last year served more than 1,300 community members across 26 unique events.

Perry has presented data-driven workshops on community engagement at the Chapter Leadership Seminar (2020, 2022, 2023), served as a panelist on the Making Change for Health Equity Diversity & Inclusion session at Bleeding Disorders Conference 2023 in Washington DC, and delivered a poster presentation at the Health Equity Summit 2024 in New Orleans.

Prior to joining the chapter, Perry worked for 6 years with a statewide early literacy organization where he doubled the annual operating budget, doubled financial assets, and fueled program growth adding nearly 40,000 families annually.

A Certified Fund Raising Executive, Perry has raised more than $25 million in his career and has taken 3 organizations beyond the $1 million annual budget milestone. He has served on various local boards and city commissions and is a two-time candidate for Aurora City Council, where his professional and personal ventures have brought people together to serve the community in an inclusive, collaborative, outcome-based manner to help the most vulnerable populations find support and voice.

Erica McLeod

As a mom of 4, which includes 3 young adult sons with severe hemophilia A as well as a daughter who is not a carrier. Living with a bleeding disorder can be very challenging and overwhelming. I am an avid advocate and believe that using your voice is key for awareness and change.

I have testified before my local legislators about the importance and accessibility of healthcare rights in the bleeding disorders community. I've spoken at numerous parent events and support groups. I am also very active with my local bleeding disorder chapters.

My goal is always to encourage and inspires others in hopes that their hemophilia journey is lighter and brighter.

Paxton Mills

Paxton Mills is a biochemistry and molecular biology major at the University of Richmond. She is also an NBDF NYLI member on the research track and a VHF community member with a rare bleeding disorder. With the Bleeding Disorders Conference Planning Committee, Paxton serves our ultra-rare communities by planning engaging and educational programming for BDC. Paxton is passionate about hematology and scientific research. She hopes to forge a career path conducting research on rare blood disorders.

Chelsea A. Nabritt, RN

Chelsee Nabritt is a former NYLI member, who has been heavily active in the bleeding disorder community since 2001, when she was diagnosed with Platelet Storage Pool Disorder. From there Chelsee was introduced to a friendly community through Hemophilia of Georgia; Chelsee attended camp annually, and when she became a teenager she attended Teen Retreat, family camp and decided to be a camp counselor for a few years to better serve the youth.

As a young adult, Chelsee learned about The National Bleeding Disorder Foundation’s youth leadership program, NYLI (National Youth Leadership Institute) and decided to join on the Advocacy track. At the time, Chelsee had just started her career in local and state government, so volunteering to advocate on Capitol Hill on behalf of the foundation became a newfound passion of hers. Having a bleeding disorder can be a challenging experience, and the journey can be tough, so helping the youth learn how to navigate through life with a bleeding disorder and teaching them how to advocate for themselves became to be a true passion of hers as well.

Chelsee received her Master’s degree in Strategic Leadership Development from Clayton State University and her Bachelor’s degree in Sociology from Kennesaw State University. Chelsee currently works as a Community Outreach Manager at the Georgia Department of Behavioral Health and Developmental Disabilities; she previously served as the executive assistant to the Forsyth County Manager and the Georgia House of Representatives at the Georgia State Capitol.

Penni J Smith, RN-BC

Penni Smith is the Inherited Bleeding Disorders Program Coordinator/RN Navigator for the Utah Center for Bleeding and Clotting Disorders at Primary Children’s Hospital (PCH) in Salt Lake City, UT. She has been the Nurse Navigator at the center since October 2008 and recently took on the role of Program Coordinator in early 2023. She works closely with Physicians, Nurse Practitioners, Physical Therapists, and Social Work to improve clinic flow and the patient/family experience. She has been involved in research at Primary Children’s Hospital/University of Utah, including the HOPE-B trial. She has a genuine enthusiasm for her patients and their families; this same enthusiasm drives her desire to volunteer in her community. She serves as the Executive Director for Christmas Jam of Utah, a 501c3. She enjoys spending time with her family, drawing/painting, and spending time in nature outside of work hours.

Kimberly Wilt

My name is Kimberly Wilt, and I am a mother of three children, one of whom has severe Type 1C Von Willebrand Disease. I am an advocate for women with bleeding disorders and currently volunteer with the Virginia Hemophilia Foundation to establish a Von Willebrand Disease Committee. Additionally, I am involved in efforts to create a global Von Willebrand Disease Alliance.