Chapter Directory
Coordinate with your local chapter to register and attend Washington Days 2025.
If you are unaffiliated with any chapter, please contact Nathan Schaefer at nschaefer@bleeding.org.
For pharmaceutical and biotech industry partners and sponsors, please email Johanna Ong at jong@bleeding.org.
| State | Chapter Name | Executive Director | Phone Number | Website | |
| Alaska | Alaska Hemophilia Association | John Palmatier | alaskahemo@gmail.com | (907) 343-9232 | www.alaskableedingdisorders.org |
| Arizona | Arizona Bleeding Disorders | Leigh Goldstein | Leigh@arizonahemophilia.org | (602) 955-3947 | www.arizonahemophilia.org |
| California | Central California Hemophilia Foundation | Stephanie Hill | Stephanie@cchfsac.org | (916) 448-0370 | www.cchfsac.org |
| California | Hemophilia Foundation of Northern California | April Steger | director@hemofoundation.org | (510) 658-3324 | www.hemofoundation.org |
| California | Hemophilia Foundation of Southern California | Rigoberto Garcia II | rigo@hemosocal.org | (626) 765-6656 | www.hemosocal.org |
| California | Hemophilia Association of San Diego County | Nooshin Kosar | nooshin@hasdc.org | (619) 325-3570 | www.hasdc.org |
| Colorado | Colorado Chapter, NBDF | Perry Jowsey | pjowsey@bleeding.org | (720) 545-0755 | https://co.bleeding.org/ |
| Florida | Bleeding Disorders Foundation of Florida | Fran Haynes | franhaynes@hemophiliaflorida.org | (407) 629-0000 | www.bleedingdisordersfl.org |
| Florida | Florida Hemophilia Association | Pepper Adair | padair@floridahemophilia.org | (305) 235-0717 | www.floridahemophilia.org |
| Georgia | Hemophilia of Georgia, Inc. | Rob Maloney | rjmaloney@hog.org | (770) 518-8272 | www.hog.org |
| Hawaii | Hawaii Chapter, NBDF | Kenneth McElderry | kmcelderry@bleeding.org | (808) 744-4216 | https://hi.bleeding.org/ |
| Idaho | Idaho Chapter, NBDF | Marlyn Walker | mwalker@bleeding.org | https://id.bleeding.org/ | |
| Illinois | Bleeding Disorders Alliance Illinois | Liz Burgess | lburgess@bdai.org | www.bdai.org | |
| Indiana | Hemophilia of Indiana | Scott Ehnes | sehnes@hoii.org | (317) 570-0039 | www.hoii.org |
| Iowa | Bleeding Disorders of the Heartland | Brooke Loving | bdh_director@bdheartland.org | (319) 721-1664 | https://bdheartland.org/ |
| Kentucky | Kentucky Hemophilia Foundation | Ursela Kamala | ursela@kyhemo.org | (502) 456-3233 | www.kyhemo.org |
| Kentucky | Bleeding Disorders of Kentucky | Alane Foley | afoley.bdoky@gmail.com | ||
| Louisiana | Louisiana Hemophilia Foundation | Danielle Rowley | director@lahemo.org | (225) 291-1675 | www.lahemo.org |
| Massachusetts | New England Hemophilia Association | Rich Pezzillo | rpezzillo@newenglandhemophilia.org | (781) 326-7645 | www.newenglandhemophilia.org |
| Michigan | Hemophilia Foundation of Michigan | Sue Lerch | slerch@hfmich.org | (734) 544-0015 | www.hfmich.org |
| Minnesota | Hemophilia Foundation of Minnesota and the Dakotas | Vicki Kopplin | vickik@hfmd.org | (651) 406-8655 | www.hfmd.org |
| Missouri | Midwest Hemophilia Association | Angela Brown | Angela.Brown@midwesthemophilia.org | (816) 479-5900 | www.midwesthemophilia.org |
| Missouri | Gateway Hemophilia Association | Bridget Tyrey | bridgettyrey@gatewayhemophilia.org | (314) 482-5973 | http://www.gatewayhemophilia.org |
| Montana | Rocky Mountain Hemophilia and Bleeding Disorders Association | Brad Benne | brad@rmhbda.org | (406) 586-4050 | www.rmhbda.org |
| Nebraska | Nebraska Chapter, NBDF | Maureen Grace | mgrace@bleeding.org | (402) 742-5663 | https://ne.bleeding.org/ |
| Nevada | Nevada Chapter, NBDF | Jacob Murdock | jmurdock@bleeding.org | (702) 564-4368 | https://nv.bleeding.org/ |
| New Jersey | Hemophilia Association of New Jersey | Stephanie Lapidow | slapidow@hanj.org | (732) 249-6000 | http://www.hanj.org |
| New Mexico | Sangre de Oro, Bleeding Disorders Foundation of New Mexico | Nathan Schaefer | nschaefer@bleeding.org | http://sangredeoro.org | |
| New York | Western New York BloodCare | Thomas Greico | tgreico@wnybloodcare.org | (716) 896-2470 | www.wnybloodcare.org |
| New York | New York City Hemophilia Chapter Inc. | Jeremy Griffin | Jeremy.Griffin@nyhemophilia.org | (917) 722-3887 | www.nyhemophilia.org |
| New York | Bleeding Disorders Association of Northeastern New York | Beth Mahar | beth.m@bdaneny.org | (518)729--3577 | www.bdaneny.org |
| New York | Mary M. Gooley Hemophilia Center | Tom Wilmarth | Thomas.Wilmarth@rochesterregional.org | (585) 922-5700 | www.hemocenter.org |
| North Carolina | Bleeding Disorders Foundation of North Carolina | Charlene Cowell | c.cowell@bleedingdisordersnc.org | (919) 319-0014 | www.bleedingdisordersnc.org |
| North Dakota | Bleeding Disorders Alliance of North Dakota | Emily Ouellette | director@bdand.org | (701) 381-0670 | www.bdand.org |
| Ohio | Southwestern Ohio Hemophilia Foundation | Joy Linder | joy@swohf.org | (937) 298-8000 | www.swohf.org |
| Ohio | Greater Ohio Bleeding Disorders Foundation | Tanya Stewart | tanya@gobdf.org | (216) 834-0051 | www.nohf.org |
| Ohio | Tri-State Bleeding Disorders Foundation | Helen Lamping | helen@tsbdf.com | (513) 961-4366 | www.tsbdf.com |
| Ohio | Northwest Ohio Hemophilia Foundation | Carla Wells | carla@nwohemophilia.org | (419) 291-5882 | www.nwohemophilia.org |
| Oklahoma | Oklahoma Hemophilia Foundation | Kerri Crabtree | director@okbleedingdisorders.org | (918) 605- 2579 | www.okhemophilia.org |
| Oregon | Pacific Northwest Bleeding Disorders | Madonna McGuire Smith | m.mcguiresmith@pnwbd.org | (541) 753-0730 | www.pnwbd.org |
| Pennsylvania | Eastern Pennsylvania Bleeding Disorders Foundation | Sarah Pilacik | sarah@epbdf.org | (610) 770-5215 | https://epbdf.org/ |
| Pennsylvania | Western Pennsylvania Bleeding Disorders Foundation | Kara Dornish | kara@wpbdf.org | (724) 741-6160 | www.wpbdf.org |
| Puerto Rico | Asociación Puertorriqueña de Hemofilia y Condiciones de Sang | Anthony Llanes Rodriguez | allanes@hemofiliapr.org | (787) 647-7985 | https://hemofiliapr.org |
| South Carolina | Bleeding Disorders Association of South Carolina | Sue Martin | Sue.martin@bda-sc.org | (864) 350-9941 | www.bda-sc.org |
| Tennessee | Tennessee Hemophilia and Bleeding Disorders Foundation | Amanda Wilson | amanda.Wilson@thbdf.org | (615) 900-1486 | www.thbdf.org |
| Texas | Texas Central Bleeding Disorders | Julie Fredericksen Jones | julie@texcen.org | (972) 386-3865 | www.texcen.org |
| Texas | Lone Star Bleeding Disorders Foundation | Melissa Compton | mcompton@lonestarbleedingdisorders.org | (713) 686-6100 | www.lonestarbleedingdisorders.org |
| Virginia | Hemophilia Association of the Capital Area | Brenda Bordelon | director@hacacares.org | (703) 352-7641 | www.hacacares.org |
| Virginia | Virginia Hemophilia Foundation | Kelly Waters | info@vahemophilia.org | (804) 740-8643 | www.vahemophilia.org |
| Washington | Bleeding Disorder Foundation of Washington | Claire Symons | clairesymons@bdfwa.org | (206) 533-1660 | www.bdfwa.org |
| West Virginia | West Virginia Chapter, NBDF | Mary Lou Warner | mwarner@bleeding.org | (304) 212-2616 | https://wv.bleeding.org/ |
| Wisconsin | Great Lakes Hemophilia Foundation | Danielle Leitner Baxter | dbaxter@glhf.org | (414) 257-0200 | www.glhf.org |
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