Saturday, March 25, 2023

• 3:45 PM Welcome Refreshments
• 4:00 PM Call to Order, Approval of Minutes from Previous Meeting and Conference Call, Disclosures
• 4:05 PM Chair Report 
• 4:20 PM CEO Report 
• 4:40 PM Health Equity, Diversity, and Inclusion (HEDI) Topic: Patient Access to Care, Access to Care Committee
• 4:55 PM Advocacy Update
• 5:05 PM Pain Working Group Update 
• 5:25 PM NHF’s 17th Workshop AAV Gene Therapy & Novel, Technologies: Understanding Neutralizing Antibodies and Genomic Analysis
• 5:35 PM MASAC Documents, MASAC Recommendations on Hemophilia Treatment Center Preparedness for Delivering Gene Therapy for Hemophilia [Action] 
• 6:00 PM Dinner
• 7:00 PM MASAC Document Updates. #272 - MASAC Recommendations Concerning Products Licensed for the Treatment of Hemophilia and Other Bleeding Disorders [Action] 
• 7:30 PM Substance Use Disorder Treatment for Those with Bleeding Disorders [Action] 
• 8:00 PM Adjourn for the Evening 

Sunday, March 26, 2023

• 7:00 AM Breakfast
• 8:00 AM Call to Order 
• 8:10 AM Physical Therapy Mentorship Program, MASAC Document Updates 
• 8:20 AM Physical Therapy Guidelines [Action] 
• 8:40 AM Vaccine Document Update [Action] 
• 9:00 AM Emergency Room Document [Action] 
• 9:20 AM NHLBI-Funded Hemophilia A Research Program (HARP) 
• 9:40 AM ATHN Transcends and ATHN Registry 
• 9:55 AM WFH Update, Gene Therapy Registry, and Living Guidelines 
• 10:15 AM Break
• 10:30 AM CDC Update 
• 10:45 AM HRSA Update 
• 11:00 AM FDA Update 
• 11:15 AM New and Deferred Business 
• 12:00 PM Adjourn