Ultra Rare Travel Grant   

2023 Travel Grant applications are closed. 

The travel grant for attending the Ultra-Rare Bleeding Disorders track at BDC is open to people with ultra-rare factor deficiencies and platelet disorders as well as members of their support network. We request that you only register people that are engaged in the affected person’s day-to-day care/support, and who will commit to attending all educational sessions. 

Eligibility 

  • Applicants must be at least 18 years old.

  • Applicants must reside in the United States or its territories. 

  • NHF Staff, Board Members and other Chapter Staff as well as those working for industry (i.e. pharmaceutical companies or specialty pharmacies) are not eligible to apply.  

If the person in your family with the ultra-rare bleeding disorder is 17 years of age or younger, you may register:

  • The affected child (17 years of age or younger) and, up to two of your child’s primary caregivers (including yourself) and the affected child’s sibling(s) that live with them

  • Siblings 18+ may not qualify for the travel grant unless they are one of the primary caregivers 

  • If any siblings have children of their own, they will not be eligible for the travel grant 

If the person in your family with the ultra-rare bleeding disorder is 18 years of age or older (legal adult), you may register:

  • One adult (spouse, significant other, friend, caregiver – does not have to live with them). This person must be involved in the affected person’s day to day care.

  • If the affected adult has children that live with them, they may bring their children under the age of 18 years, but only one additional adult support person (spouse, significant other, friend, caregiver).

Note: NHF will only cover the cost of 1 room with a maximum occupancy of 4 people. You may bring additional family members at your own expense. 

Program Requirements 

  • If you are selected for a travel grant, attendance during conference hours is required for all participants ages 13 and older. If you and your family members do not attend the sessions at BDC, you will not be considered for future travel grants.  

  • Attend the travel grant welcome session onsite.

  • Complete the travel grant overall evaluation.

  • Attend the virtual post event meet up on Wednesday, November 15, 2023, at 8:00 PM ET.

  • Adhere to conference behavior guidelines. 

What do travel grants cover? 

The travel grants may be used to cover the following types of assistance that you TRULY need: 

  • Airfare or Mileage
  • Hotel - One room
  • Kids Program for children 12 and younger
  • In person registration fees 

*The application will ask you which of those you truly need in order to attend. By selecting the accurate assistance, NHF will be able to possibly open the grant up to more applicants

Covered Expenses: 

  • NHF allows up to 4 people per household.

  • Hotel accommodations are covered for a maximum of four nights and five days (check-in August 16th and check-out August 20th).

  • In-person registration fees to the conference are covered. If you apply for a travel grant and complete a payment for conference registration, you will NOT be given a refund if you are selected for the travel grant. 

Expenses NOT Covered by NHF:

  • Ground Transportation to and from the airport 

  • Parking at your local airport

  • Airline baggage fees 

  • Food and beverage. However, there are many opportunities at BDC events for refreshments and meals

  • Additional family members are allowed to attend the conference, at your own expense

  • Mileage to and from your home airport

Questions?

Please contact the travel grant team at bdctravelgrants@hemophilia.org.