The National Hemophilia Foundation ‘s (NHF) Health Equity (HE) Summit “Every Hour, Every Day: Ensuring health equity in the inheritable blood disorders community” will be held June 1st and 2nd  in Atlanta, GA (in-person summit with COVID-19 safety protocols). NHF is dedicated to finding cures for inheritable blood disorders and addressing and preventing the complications of these disorders through research, education, and advocacy to enable people and families to thrive. To fulfill this mission, NHF recognizes health equity is an integral component to meeting the mission. The HE Summit will solicit input from members of the inheritable blood disorders community as well as from other important stakeholders such as providers, other organizations in the blood disorder and rare disease community, health equity champions, and Industry. Our goal for the HE Summit is to strive for equitable access and quality care for those with inheritable blood disorders.

The mission of this summit is as follows:

To bring stakeholders together around the topics of access to care, mental health, navigating health systems, payers/policy for a better understanding of lived experiences, data outcomes and existing disparities that lies within the realm of our influence. The goal is to identify where each stakeholder’s group can intervene and work towards permanent changes resulting in health equity for all. 


  1. Transform organizational culture and align daily work to achieve health equity.
  2. Address emerging IBD community health needs, including issues with access to care, by supporting adaptable, innovative, outcome-focused, sustainable programs and services.
  3. Improve access to services and care by supporting integration and coordination of health services, health care providers, payers, and the public health sector.
  4. Expand stakeholder partnerships that lead to sustainable initiatives that eliminate health disparities.

Please CLICK HERE for the summit agenda.

To travel for NHF business, NHF requires you to be fully vaccinated for COVID-19. It is our duty to protect the community we serve and therefore being vaccinated is the best way to ensure we are doing our part in this effort to end COVID-19. All staff traveling to Atlanta, GA are subjected to this vaccination requirement. Fully vaccinated means 2 weeks after the second dose in a 2-dose series, or 2 weeks after a single-dose vaccine. NHF strongly recommends all attendees have the booster shot as well. To attend the workshop, in-person attendees need to be fully vaccinated by Wednesday, May 18 2022. For medical or religious exemption, please contact Dr. Keri Norris at knorris@hemophilia.org

To register, please refer to the link shared with you by Ciarra de Leon. The deadline to register is Wednesday, May 4 at 11:59 PM EST.