Welcome to National Hemophilia Foundation’s Virtual 2022 Washington Days!
 

NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 44 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.  

Washington Days 2022 will be an entirely virtual experience with programming from March 1 – March 2.

The issues at Washington Days 2022 will include:

  • Bleeding Disorders Awareness (March is our month!)
  • Federal Funding for Bleeding Disorders Program
  • HR 5801 (Accumulator Adjuster Legislation)


Washington Days Agenda

Each registrant is expected to participate in all scheduled events, all times are EST.

Tuesday, February 15 2:00 PM - 3:00 PM Planning Webinar for Beginner Advocates (0-1 time attending prior WD)
Tuesday, February 15 3:30 PM - 4:00 PM Planning Webinar for Advanced Advocates (2 or more times attending WD)
Tuesday, March 1 3:00 PM - 5:00 PM Hill Visits and Issues Training
Tuesday, March 1 5:00 PM - 5:30 PM 30 Minute State Team Meetings
Wednesday, March 2 TBD Legislative Meetings (schedule will be shared with registered attendees by Sunday, February 28)
Wednesday, March 2 4:30 PM - 5:30 PM Optional Post-Appointment Check-In

Registration closes Friday, February 4, 2022 at 11:59 PM EST.

For any registration related questions, or if you registered and can no longer participate, please e-mail nhfregistration@hemophilia.org.

For any advocacy related questions or concerns, please contact advocate@hemophilia.org


 


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