The EHC committee on Women and Bleeding Disorders

The EHC committee on Women and Bleeding Disorders is composed of eight passionate women dedicated to create awareness, recognition, support and education about and for women with rare bleeding disorders. Since 2017, the committee has been incredibly active and has developed several activities to achieve their objectives.

Here we want to present you a couple of examples of their work but you can find more by clicking here.

Diagnosis Leaflet

Preparing for menarche

EHC Website WBG Page

WBD Committee Page

WBD Postcard

Foundation of Women & Girls with Blood Disorders

Foundation for Women & Girls with Blood Disorders

FWGBD is an innovative organization dedicated to achieving correct diagnosis, treatment and management of blood disorders and accompanying reproductive problems in women and girls.

The disorders of concern include von Willebrand Disease (VWD), other factor deficiencies, thrombophilias, hemoglobinopathies, sickle cell disease (SCD), immune thrombocytopenic purpura (ITP) and anemias. FWGBD works to achieve its goal through raising awareness and educating healthcare providers across disciplines.

FWGBD Membership Overview

Ask the Experts

Archived webinar symposia list

FWGBD LAN Overview and Description

eLearning Centres

Inherited Bleeding Disorders

In people with bleeding disorders, the blood clotting process doesn’t work properly. As a result, people with bleeding disorders can bleed for longer than normal, and some may experience spontaneous bleeding into joints, muscles, or other parts of their bodies.

Click here for more information.

Carriers and Women with Hemophilia

For many years, people believed that only men could have symptoms of hemophilia and that women who "carry" the hemophilia gene do not experience symptoms themselves. We now know that many carriers do experience symptoms of hemophilia.

Click here for more information.

What is von Willebrand disease (VWD)?

von Willebrand disease (VWD) is the most common type of bleeding disorder. People with VWD have a problem with a protein in their blood called von Willebrand factor (VWF) that helps control bleeding.

Click here for more information.

Support the WFH

Support our work

We believe that where you live should not determine your access to care.

Bleeding disorders do not discriminate—they affect individuals and families everywhere. Left untreated, bleeding disorders can lead to debilitating injury and can even become life-threatening.

Through our global network of national member organizations (NMOs), we work to ensure that every person—including those living with hemophilia and von Willebrand disease, those with rare factor deficiencies and women with bleeding disorders—is accurately diagnosed and properly treated.

The EHC committee on Women and Bleeding Disorders