Oral Presentation 3
Resident and Family Engagement

Tuesday, November 28, 2017
2:00 - 3:15 pm
Queens Quay/ Bay

This session will showcase a series of projects including:

Impact of Residents' Councils and Family Councils in Ontario Long-Term Care Homes

Increased and meaningful patient, resident and family engagement is a major priority in Ontario’s health, home, and community care sectors.  The Change Foundation wanted to better understand the role and functioning of Residents’ Councils and Family Councils in Ontario’s long-term care homes.  This presentation will highlight key findings from a two-phase project jointly designed with long-term care sector partners.  Highlights of findings from the phase-one survey to residents, family members, and administrators/staff assistants will be presented with a focus on how the role, effectiveness, and impact of the councils are perceived.  Key findings from the recently released report of the second phase of the project – Spotlight on Residents’ Councils and Family Councils in Five Long-Term Care Homes in Ontario – will also be presented, highlighting how the councils contribute to quality of life and quality of care in the homes, and how they influence change in the home. 

Speaker: Lori Hale

REACH – Resident Experience Action Council for Homes

REACH - Resident Experience Action Council for Homes is an integrated team of representatives from Extendicare, Family and Residents' Councils and residents from across Canada who aspire to enhance our residents lives by evaluating and supporting innovative action tools for our homes.
Originally formed over three years ago as an Ontario Provincial Committee we were chartered to assist our homes with the development of their Quality Improvement Plans and specific indicators related to Resident Experience. We have enjoyed enthusiastic participation and contributions from the wide-ranging talents on our team, and have recently been re-chartered as a National Council encompassing not only Ontario but also Manitoba, Saskatchewan, and Alberta.

Speaker: Rosemarie Lindau & Niklas Chandrabalan

Caring is more than providing care: Lessons Learned from the "Designing Assistive Technology that Cares (DAT Cares)" Workshop

Informal (family) caregivers have individual and complex needs beyond providing or coordinating care for their loved one. While technology has the potential to support informal caregivers, such technologies are often developed without the caregiver’s and care recipient’s (CR) needs and perspectives in mind. “Designing Assistive Technology that Cares” was a three-day workshop held at the Research Institute for Aging. The workshop brought together 40 caregivers and other professionals from various disciplines and sectors, including academia, industry, government, not-for-profit, and long-term care. Together, participants collaboratively explored how technologies can be designed to support the holistic needs of informal and formal caregivers. Key messages from the workshop that will be discussed include: positioning caregivers as partners and experts when exploring innovative technology to best supports CRs; developing innovative technologies to strengthen relationships between the CR, formal and informal caregivers; and how LTC policies and practices can be amended to best support the needs of all parties.

Speaker: Darly Dash, Luke Denomme, Lora Bruyn Martin, Jennifer Boger

Staff Recommendations for Enabling Leaders to Accelerate Resident-Centredness in Long-Term Care

Resident and family-centered care involve promoting the active participation of all health care team members to enhance resident and family-centred goals and values through communication, using the principles of dignity and respect, information sharing, participation, and collaboration. Quality and safety are associated positively with engaging families in the planning, delivery, evaluation, and planning of healthcare. Yet, capacity building and education in support of long-term care staff for family engagement have been limited, despite documentation of distress in staff-family relationships. During staff educational programming, this innovative initiative staff identified ways for leadership to enable staff to engage families in care - despite an uncovered tension of conflicting goals and complexity between organizational directives and staff expressed needs for wellness and safety when working with families in distress. Results are offered in the form of thematic coding and examples of staff recommendations for quality enablers and leadership competencies. 

Speaker: Shoshana Helfenbaum

Five key opportunities for healthcare leaders to support person and family-centered care

The benefits of person and family-centered care (PFCC) are well-documented and finding ways to implement it is front of mind for many healthcare organizations. To address the need for implementation guidance, Saint Elizabeth Health Care offered PFCC education workshops to over 2000 healthcare leaders, providers, and support staff across Canada. To evaluate the impact of the workshops, we surveyed participants, as well as conducting focus groups with 192 care providers, support staff and managers in six home care, community and LTC organizations. Twenty residents and family members also took part in discussion groups. This presentation will report on the themes identified using inductive thematic analysis that centered on the role leaders could play in nurturing PFCC in their organizations. We will share powerful examples from focus group participants that illustrate each theme and their specific recommendations for addressing each of these five opportunities. 

Speaker: Danielle Bender

This session was generously sponsored by: