| THURSDAY OCT. 24 | |
| 5:00 p.m. - 9:00 p.m. |
Registration |
| 5:00 p.m. - 7:00 p.m. |
Welcome buffet dinner |
| 6:45 p.m. |
Camp Courage opens |
| 7:00 p.m. - 9:00 p.m. |
Syndrome breakout sessions |
| 9:15 p.m. |
Camp Courage closes |
| For Newly Diagnosed Families | |
| 5:00 p.m. - 6:00 p.m. |
Registration and dinner for newly diagnosed families (diagnosed in the last 12 months) |
| 5:45 p.m. |
Camp Courage opens for families attending the newly diagnosed session |
| 6:00 p.m. - 7:30 p.m. |
Overview of MPS and Related Diseases, Dr. Jospeh Muenzer |
| 7:30 p.m. - 9:00 p.m. |
Coping with MPS and Related Diseases, Dr. Kimberly Frye |
| FRIDAY, OCT. 25 | |
| 7:30 a.m. - 8:45 a.m. |
Continental Breakfast |
| 8:30 a.m. |
Camp Courage opens |
| 8:45 a.m. - 9:00 a.m. |
Welcome |
| 9:00 a.m. - 10:00 a.m. |
Potential New Therapies, Dr. Joseph Muenzer |
| 10:00 a.m. - 10:30 a.m. |
Research Update. Dr. Matthew Ellinwood |
| 10:00 a.m. - 12:00 p.m. |
Sibling Workshop, ages 12-18 |
| 10:30 a.m. - 11:00 a.m. |
Break |
| 11:00 a.m. - 11:15 a.m. |
One Family's Experience |
| 11:15 a.m. - 11:45 a.m. |
Fundraising workshop |
| 11:45 a.m. - 12:00 p.m. |
Legislative workshop |
| 12:00 p.m. - 12:15 p.m. |
Remembrance ceremony |
| 12:15 p.m. |
Camp Courage closes |
| 12:30 p.m. - 1:30 p.m. |
Box lunch and annual general membership meeting of the National MPS Society |
| 1:45 p.m. |
Camp Courage opens |
| 2:00 p.m. - 3:00 p.m. |
Sibling workshop, ages 7-11 |
| 2:00 p.m. - 4:00 p.m. |
Concurrent Sessions
|
| 4:00 p.m. - 5:00 p.m. |
Treatment and Clinical Trial Updates
|
| 5:15 p.m. |
Camp Courage closes |
| 6:00 p.m. |
Awards banquet |
| SATURDAY, OCT. 26 | |
| 8:30 a.m. - 10:00 a.m. |
Continental Breakfast |
| 10:00 a.m. |
Bus to Morgan's Wonderland |
| 5:00 p.m. |
Last bus returns to hotel from Morgan's Wonderland |
| 11:00 a.m. |
Bus to San Antonio River Walk |
| 4:00 p.m. |
Bus returns to hotel from San Antonio River Walk |
| 6:00 p.m. - 9:00 p.m. |
Buffet dinner |
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