Full agenda and session schedule to follow.
Schedule
Thursday, December 19
8:00 a.m. – 12:00 p.m. Board of Directors meeting
12:00 p.m. – 6:00 p.m. Registration open
MPS Jingle Bell 5K Run/Walk packet pickup
12:30 p.m. Camp Courage Opens
1:00 p.m. – 4:30 p.m Photographer
1:00 p.m. – 10:00 p.m Reflection Area
1:00 p.m. – 4:30 p.m. Scientific Conference Sessions
Opening Plenary Session
Science Today – Emerging Therapies & Treatments
Research Updates
Scientific Panel
Research Grant Awards
4:30 p.m. Camp Courage Closes
5:00 p.m. – 5:30 p.m. Family-Friendly Remembrance Celebration at Disney Springs
6:00 p.m. – 7:30 p.m. Welcome buffet dinner
Newly diagnosed family dinner (diagnosed in the last 12 months)
Overview and Coping with MPS and ML
7:30 p.m. – 9:30 p.m. Camp Courage Opens
7:30 p.m. – 9:30 p.m. Breakout sessions (syndrome, connection, others)
9:30 p.m. Camp Courage Closes
Friday, December 20
6:45 a.m. – 8:00 a.m. Grab-and-go breakfast, optional breakout gathering sessions
7:00 a.m. Onsite registration and packet pickup for MPS Jingle Bell 5K Run/Walk
8:00 a.m. – 11:00 a.m. MPS Jingle Bell 5K Run/Walk, Celebration Lunch, Entertainment
10:00 a.m. Awards and sponsor recognition
11:30 a.m. Camp Courage Opens
11:30 a.m. – 5:30 p.m. Family Conference Sessions
Care and management
Neurological and neurocognitive needs
Orthopedic issues
Concurrent sessions (including mental health/wellness, genetics, specific symptom management, and more)
5:30 p.m. Camp Courage Closes
6:30 p.m. 50th Anniversary Banquet Celebration Dinner and Party
8:30 p.m. Special outing opportunity for those with MPS/ML and their siblings