09h00 Welcome

09h30 Opening Session
            Filipe Assoreira, Country Manager, Genzyme      

09h45 FINANCING R&D : PARTNERSHIPS

Why Orphan Drug's Financing Is Different? A Multi-Stakeholder Approach
                Hans Schikan, CEO, Prosensa 

Panel Session

Luis Portela, Chairman, BIAL
                Paula Costa, President, Rarissimas

            Facilitator: Nuno Arantes-Oliveira, President, P-Bio                               

10h45 Coffee Break

11h00 CLINICAL DEVELOPMENT ON ORPHAN DRUGS: PARTNERING WITH LOCAL AND EUROPEAN REGULATOR   

Panel session  

Rogério Gaspar, Professor, Pharmacy University

Carlos Martins, President, Centro Hospitalar Lisboa Norte, EPE

Facilitator: Eduardo Silva, Ophtalmology Assistant Professor, Faculdade de Medicina, Universidade de Coimbra           

11h45 MARKET ACCESS ON RARE DISEASES            

Europe - Can Partnership for Reimbursement be developed on the Orphan Drug Field?

Fernando Royo, President of Genzyme Foundation   

Panel session

António Ferreira, President, Hospital de São João

Francisco Batel Marques, Associate Professor, Universidade de Coimbra

Facilitator: Helena Garrido, Director, Jornal de Negócios                 

12h45 Closing Remarks

Eurico Castro Alves, President, INFARMED