The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. We look forward to meeting with legislators and staff in person with hundreds of volunteer advocates across the United States to discuss issues important to our community.
Given the 2024 election and the many changes coming to Washington, NBDF is still working to determine the specific issues we will discuss at Washington Days 2025. We can say with certainty that NBDF's top priority is to advocate for policies that protect and strengthen access to affordable, high-quality health insurance and access to care for all members of the bleeding disorders community. Check back soon for more information on our issues for Washington Days 2025.
Please read through this page for registration, meals, hotel accommodations, airline discounts, and mobile app information to better acquaint yourself with and prepare for NBDF's biggest advocacy event.
Dates
March 5-7, 2025
Venue
Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue, NW
Washington, D.C. 20001
Watch last year's highlights
How to Attend and Advocate
Washington Days 2025 will be a fully in-person event and registration is required to attend. We anticipate Washington Days to be a full-capacity event, and we will only accept registrations until Friday, January 17, 2025, subject to the number of attendees registered. There will be no registration on-site.
To help make this gathering possible, we ask that each adult contribute a nominal registration fee of $25.00. This will help offset the costs of registration and meals.
Registration
We encourage bleeding disorders community advocates to coordinate with their local chapters to help us better manage registration and state representation.
For those not affiliated with a chapter, please revisit this page on January 9, 2025 when we open general registration. For any questions, email Nathan Schaefer at nschaefer@bleeding.org.
For pharmaceutical and biotech industry partners and sponsors, please email Johanna Ong at jong@bleeding.org.
Dress Code
Wednesday, March 5 - casual
Thursday, March 6 - business attire (no hoodies/sweatshirts, no caps/beanies)
Friday, March 7 - casual
To maintain a respectful and inclusive environment, we kindly ask that attendees avoid wearing clothing with political messages during Washington Days. Thank you for helping us keep the focus on our shared advocacy goals.
Meals at Washington Days
NBDF will be providing the following meals:
Wednesday, March 5 - Buffet Dinner
Thursday, March 6
Breakfast pastries, coffee, tea, and juice
Buffet Dinner
Friday, March 7 - Breakfast pastries, coffee, tea, and juice
Hotel Accommodations - No Room Rate Increase!
NBDF is pleased to offer the same discounted hotel rate this year, including a waived destination fee, as the previous Washington Days.
Hotel
Room Rate
Hyatt Regency Washington at Capitol Hill
$265++
Attendees will receive the hotel reservation link in their registration confirmation email. The reservation deadline is January 17, 2025, subject to room and rate availability.
Airline Discounts
NBDF negotiated with Delta, United, and Southwest Airlines for fare discounts. Click here for details.
Mobile App
A mobile app* will be made available to all advocates that will enable them to:
view meeting schedules and receive notifications
take notes about meetings
reference talking points
view leave behinds and email them to congressional staff
research legislators' bios, voting records, news, social media pages, and more
research bills of interest (status, current sponsors and co-sponsors, summary)
send thank you notes to congressional staff
*Mobile data rates may apply. By February 2025, registered attendees will receive an email with instructions on downloading and accessing the app.
NBDF's Infectious Disease Duty of Care
NBDF is committed to creating a safe and healthy environment for all our community members: consumers, chapters, providers, presenters, exhibitors, and staff. However, while vaccinations, negative COVID tests, observance of safety protocols, and exercise of personal discipline may reduce risk, an inherent risk of exposure to infectious disease does remain in any public place where people are present. Additional information can be found on NBDF’s Infectious Disease Duty of Care.
